Harriet Davis suffered from a rare degenerative metabolic disease. She was unable
to speak, and had lost most of her motor abilities.
With difficulty she could use a word chart and make use of an electric wheelchair.
Seaside holidays, in the company of family and friends, were a source of great joy
and enrichment to her and thus to all who knew her. She died at the age of eleven
years and the Trust was established in 1992 as a tribute to her shining and indomitable
Her parents, as the principal carers of an increasingly frail child were constantly
reminded of the lack of suitable holiday accommodation which would allow a severely
disabled child to take part in a real family holiday.
Many such children need specialised equipment and surroundings which make it difficult
for them to go on holiday with their families. Many, by the very nature of their
illness, which often involves multiple disablement, are unable to participate in
activity type holidays.
These children often have a limited life span and are in need of constant care and
attention. The difficulties involved are such that many families find the problems
of going on holiday together not only daunting but insurmountable.